Sorry, I deleted two key words from my original email, below.
This sentence should read "She has congenital torticollis *and
Deformational Plagiocephaly*
(not the same thing as those infants who develop this as a side effect
of sleeping on their backs, see here:
http://pediatrics.aappublications.org/cgi/content/full/109/1/19 )
Accidentally deleted the Deformational Plagiocephaly when I inserted the
link, my apologies.
Candace
Candace Lemarr wrote:
> Ian,
>
> I understand only a small part of what the special circumstances are
> surrounding the necessary care you take with Cai.
> I hope that you know I did not mean to imply that my daughter's
> situation was comparable to Cai's.
>
> I think I understand about the coughing thing, and trying to teach that
> to him, but only in a small way, My two were born without the sucking
> reflex, it hadn't kicked in yet, so we had to syringe feed them for
> about a week and a half until they learned how to suck. The things we
> take for granted. I am hopeful that Cai will learn how to cough, and
> cough well, on his own.
>
> My daughter is doing much better, and you are right, the human body is
> astounding in what it can recover from.
> She has congenital torticollis (not the same thing as those infants who
> develop this as a side effect of sleeping on their backs, see here:
> http://pediatrics.aappublications.org/cgi/content/full/109/1/19 ), so
> there are still some things that we work on, balance is one thing, as
> well as continual muscle development in her upper back, neck, and
> shoulders. She had weekly physical therapy until she was 14 months old.
> She is in dance now as a way to help with her balance and muscle
> development. This condition, in her case, is due to positioning in
> utero. As she is a twin, her brother was happy to hog much of the
> available space, while she was stuck in one spot and never moved out of
> it the entire time...so she grew a little differently. She is most
> definitely our miracle child. (But then, I think all children are
> miracles). She will also see a specialist in Feb. to assess the
> difference in bone length in her jaw. One side is millimeters shorter
> than the other. We are hopeful this will not require any invasive
> procedures, but rather manipulative things that can be done as she
> grows. I, however, find the differences in her facial symmetry to be
> fascinating. I think it adds to her attractiveness, and it makes her
> very much fun to photograph. She has so many "faces", depending on the
> angle and the direction she is turned.
>
> She has come a very long way, even the doctors are amazed at how the
> asymmetry is less and less noticeable at each check-up.
> We are grateful every single day for her progress and for the gift that
> she and her brother are to our lives.
>
> Best wishes to you and yours. :-)
>
> Candace
>
>
>
> SwissPace wrote:
>
>> now we just have to hope he can learn how to cough - something thats
>> very difficult to teach if you don't learn it instinctively.
>>
>> I hope your daughter has overcome her problems, its still amazes me from
>> what the human body can recover from and repair itself.
>>
>>
>>> Ian,
>>>
>>>
>
>
--
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